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EDS, Hypermobility, and Autism
Research shows connections between autism and connective tissue disorders.
"When I finally got diagnosed with EDS, so many things clicked. The chronic pain wasn't 'just anxiety.' It's all connected." — Autistic adult with EDS
The Connection
People with EDS are more likely to have autism, and autistic people are more likely to have hypermobility. They often run in the same families.
What is EDS?
EDS (Ehlers-Danlos Syndromes) affects:
- Skin (stretchy, fragile)
- Joints (hypermobile, prone to dislocation)
The most common type associated with autism is hypermobile EDS (hEDS).
The Triad
Many experience an overlap of:
- Autism (and/or ADHD)
- EDS/Hypermobility
- POTS (rapid heart rate upon standing, dizziness, fatigue)
Shared Experiences
Both can involve: light and sound sensitivity, chronic pain, fatigue, GI issues.
Getting Help
Many doctors are unaware of these connections. Symptoms are often dismissed as "just anxiety."
If your joints are weird and you're autistic, you're not imagining the connection.
What Helps
For hypermobility: Physical therapy focused on stabilization (not stretching!), joint protection.
For POTS: Hydration, electrolytes, compression garments.
If dismissed: Seek second opinions. Document symptoms.
If you have chronic pain, fatigue, or joint issues alongside autism, consider exploring whether hypermobility might be part of the picture.